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End Of Life (EOL)

The impact of a dying care pathway on end of life care following stroke

Specialty
Stroke (co-adopted by Ageing)
Portfolio Eligibility
Automatically eligible
ISRCTN
EudraCT
MREC N° 11/WS/0024
UKCRN ID 11143
WHO ID
Research Summary
Despite advances in treatment, approximately 20% of people die in the first 30 days following stroke. Using care pathways like the Liverpool Care Pathway (LCP) may improve end of life experiences for patients and relatives. However the application and effectiveness of such care pathways after stroke requires investigation. This 28 month study will describe and explore what happens to patients who are placed on a dying care pathway in four stroke units across three Scottish health boards. We are interested in knowing whether pathways improve care delivery for patients from the family/carer and professional perspective. Equally we are interested in those who die but were not placed on such a pathway. Ultimately we want to ensure that patients at the end of life, and their families, feel supported and cared for during this time. Casenotes will be audited for all patients admitted during a 12-month period and who are placed on the LCP/equivalent, or who die during admission although not on LCP/equivalent. It is anticipated that the total sample may involve around 100 casenotes. In addition data on death/survival will be collected for a subgroup of 15 patients from all study units who are placed on LCP/equivalent and subsequently transferred to another place of care. Demographic and clinical variables such as age, sex, stroke type, use of LCP/equivalent and death/survival will be recorded from patient casenotes. Data on care and communication with relatives will be retrieved from casenotes using an abbreviated LCP audit tool. Semi-structured interviews will be conducted with 12-13 HCPs and up to 15 relatives, 3 months after bereavement, in each study site until data saturation is reached. A validated questionnaire will also be administered to the relatives at interview. Descriptive statistical analysis and thematic content analysis will be carried out. Results and findings will be reported.
Study Type Observational
Design Type Qualitative
Disease(s) In hospital study
Phase N/A
Current Status Closed - follow-up complete
Closure Date 2/1/2013
Global Sample Size 40
Global Recruitment to Date
100%
Geographical Scope UK Multi-Centre
Lead Country Scotland (also active in England)
Main Inclusion Criteria
next of kin, friend or carer for a stroke patient on LCP/equivalent in study site; speaks English; aged 18 or more
Main Exclusion Criteria
subarachnoid haemorrhage; cerebral metastases
Chief Investigator(s)
Ms Eileen Cowey
Further details, please contact
Ms Eileen Cowey

University of Glasgow
Division of Nursing & Healthcare, Faculty of Medicine
59 Oakfield Avenue
Glasgow
Lanarkshire
G12 8LW
UNITED KINGDOM

eileen.cowey@glasgow.ac.uk
Funder(s) Chest Heart & Stroke Scotland
Sponsor(s) NHS Greater Glasgow & Clyde




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